Hi everyone, I just thought I would tell you about our fab news that we had this weekend. Now its nothing at all to do with crafting, but my little girl. As you know from my profile Abbie has Cystic Fibrosis and life with her is a daily routine of meds and pyhsio etc (I wont go into details). Anyhow a few months ago after a routine check up in hospital one of her cough swabs came back postive for a bug call Peusdomonas which can be very damaging to the lungs. This is a bug that people with CF are are at a high risk of catching, now normally it is expected that a child with CF will have cultured this bug by the age of 9-10 now Abbie is only 2 so it was a massive blow to us. She was started on a very aggresive form of antibiotics and was put on a nebulizer for 3 months. She needed to have 3 clear cough swabs taken monthly to come back clear, which would mean that for the time being the bug had been erradicated (it can keep coming back and if it does she will be on this nebulizer permanently). Anyway we have had a tough time with her getting used to this nebulizer and the drugs in it have reacted badly with her face, some days she looks like she has got acne. Well over this weekend we had the call from her nurse to say the last cough swab has come back clear, to say we are over the moon is an understatement (I have tears of happiness in my eyes just writing this). So this now means that for the time being she has managed to get rid of this nasty bug and can come off the nebulizer wey hey!!!!!!!!!!. You would not believe how much that phone call meant to us as a family. We have also had an application form to fill in from Dream Holidays (they specialise in giving families if children with CF a holiday to give them a break) so fingers crossed we should have a nice holiday to go on next year. Just hoping now that our next trip to Birmingham Childrens will go smoothly as well, they were a bit worried about her weight last time, so hopefull she has put some on this time or that could mean more meds.
Anyway thanks for listening to my ramblings, just has to tell you all.
Lyndsey xx
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9 comments:
awwww Lynsey that is fantastic news!!! I am so chuffed for you. Hoping that a wonderful holiday comes your way for next year.xxx
That's brilliant news Lyndsey. Isn't Birmingham Childrens Hospital the best. I spent quite a lot of my childhood there. Hope you can have a great holiday next year!
x x
Wow what wonderful news, I'll keep my fingers crossed for a dream holiday for you next year!
Mrs W x
Wowee Lyndsey that is fabby news! Just in time for crimbo too, that's wonderful! Hope that you get your well earned holly next year too! Love and hugs to you all :0) Tab xxx
That's so great to hear Lyndsey, good news is brilliant, especially just before Christmas!
I feel bad for moaning about myself now, when you and your family are living with something much worse day to day!
Take care, Tara xx
Hi Lyndsey
Glad to hear your good news. It must be difficult at times for you with your little girl having this illness. I hope she keeps well.
Hugs Lynsey :)
Thats great news for your family. Here's to a super Christmas for all of you, hugs Heidi xxx
what brilliant news, am so pleased for you and your family, must be such a relief :) ill keep fingers crossed for a lovely well deserved holiday next year xxx
great news so pleased for you Lyndsey so fingers crossed for a fab christmas and a great well deserved holiday next year. luv gina xx
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